Federal health officials didn’t provide information about how people’s private medical data will be collected and managed.

The US Department of Health and Human Services on Wednesday unveiled a pilot program for the National Institutes of Health to ...

The National Institutes of Health director said they were launching an autism registry — but a Health and Human Services ...

The NIH will not create an autism registry as part of its $50 million project to research autism spectrum disorder.

The National Institutes of Health will partner with the Centers for Medicare and Medicaid to create a database of Americans ...

The director of the National Institutes of Health previously floated — then walked back — the idea of an autism registry, ...

Federal health agencies will create a database of autism patients enrolled in Medicare and Medicaid that researchers will use ...

Pritzker said the order was necessary in response to concerns about the creation of a federal autism registry or database without legal protections.

As part of Robert F. Kennedy Jr.'s quest to find the cause of autism, the NIH will begin using privacy-protected Medicare and Medicaid data.

“We are not creating an autism registry,” a spokesperson for the Department of Health and Human Services said in an email to Fierce Healthcare. The spokesperson clarified the department will ...