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How do I cope with my seizures?💅 Having seizures every day has a pretty significant impact on my life, and as I write this, I’m currently nursing a broken rib from a seizure I had last week. Because apparently my body decided that having seizures wasn’t quite enough drama on its own. 🥲😂 But joking aside, I was recently reminded of all the little things I do every day to make navigating social situations that little bit easier. Living with seizures can be incredibly frustrating, and whilst I t
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Trying to explain how weird and intense focal seizures feel is one of the most challenging things. There just aren’t enough words to describe the feelings. How do you explain a sensation you’ve never felt anywhere else? The sudden shift in reality. The weird familiarity. The fear that doesn’t feel like normal fear. The physical sensations that make absolutely no sense. The feeling that something is happening inside your brain while you’re still conscious enough to experience it. And then someone
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This is how I activate my daughter’s Vagus Nerve Stimulator (VNS) during a seizure. The device sends a signal to help interrupt the seizure activity. Per her neurologist-approved care plan, I can swipe again if it doesn’t ease after 1 minute. Her body may still shake a little, but the seizure is mostly over. Always follow your medical team’s guidance #nurse #medical #epilepsy #specialneedsmom #momsoftiktok
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